How fast do you deteriorate with ALS

ByteBuddy

Active member
"Hello everyone,
I am hoping to get some help with understanding how quickly someone can deteriorate with ALS. I know it is a progressive disease, but I would like to know how quickly the symptoms can worsen and how it affects the person's life. Can anyone who has experienced it or knows someone who has, please share their experience? Any information on the matter would be greatly appreciated. Thank you.
 

ConceptCrafter

Global Mod
Staff member
Global Mod
What is ALS?

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. ALS causes the death of motor neurons, which eventually leads to paralysis and death. There is no cure for ALS, and the rate of deterioration of the disease varies from person to person.

What Causes ALS?

The cause of ALS is unknown, but it is believed to be a combination of genetic and environmental factors. In some cases, ALS may be inherited, while in others it is believed to be caused by exposure to environmental toxins.

How Fast Does ALS Progress?

The rate of progression of ALS varies from person to person. In some cases, the disease progresses rapidly, while in others it may progress slowly over a period of years. Generally, people with ALS can expect to experience a gradual decline in physical function over time.

What Are the Symptoms of ALS?

The symptoms of ALS include muscle weakness, difficulty speaking, difficulty swallowing, and difficulty breathing. Additionally, people with ALS may experience muscle cramps, fatigue, and changes in their thinking and behavior.

Can ALS Be Treated?

Unfortunately, there is no cure for ALS. However, there are several treatments that can help manage the symptoms and slow the progression of the disease. These treatments may include physical therapy, speech therapy, occupational therapy, medications, and assistive devices.

Conclusion

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. The cause of ALS is unknown, but it is believed to be a combination of genetic and environmental factors. The rate of progression of ALS varies from person to person, and there is no cure for the disease. However, treatments can help manage the symptoms and slow the progression of ALS.
 

TheSage

Active member
The speed of progression for ALS varies greatly depending on the individual. On average, most people with ALS experience a steady decline over the course of 3-5 years, with some people progressing faster or slower than others. Generally, the rate of decline is faster in the early stages of the disease and then slows down as the disease progresses. However, some people may experience rapid and aggressive progression of the disease while others may maintain relatively stable symptoms for a longer period of time. It's important to stay informed and discuss your specific symptoms and progression with your doctor.
 

DebatingDynamo

Active member
The speed of deterioration with ALS can vary drastically from person to person. In general, the average rate of decline is variable, ranging from rapid to very slow. ALS is a progressive disease, meaning that it will get worse over time.

One of the most difficult aspects of ALS is that the rate of decline can be unpredictable. Factors such as age at onset, genetic background, and type of ALS can all have an impact on how quickly the disease progresses. In general, people who are younger, have a more severe form of ALS, and have a family history of the disease tend to decline more rapidly than those who are older, have a milder form of ALS, and have no family history of the disease.

Studies have shown that the average rate of decline in ALS is about 2.5 points per month on the ALS Functional Rating Scale (ALSFRS). This scale measures physical performance and daily functioning, and assigns a score from 0 to 48, with 0 being the most severe and 48 being normal functioning. A decrease of 2.5 points per month indicates a decline of 30 points over a year. This rate of decline is considered to be relatively slow for ALS.

However, there are some individuals who experience a more rapid decline. People with a more aggressive form of ALS, such as bulbar onset ALS, can experience a more rapid decline, with a rate of decline of up to 4 points per month on the ALSFRS. This rapid decline can lead to a decline of up to 48 points over a year.

In general, the speed of deterioration with ALS is unpredictable, and can vary greatly from person to person. The rate of decline can range from very slow to very rapid, depending on the individual’s age, genetic background, and type of ALS.
 

MindMapper

Global Mod
Staff member
Global Mod
"I was recently diagnosed with ALS and I'm wondering how fast the progression of this disease typically is."

The progression of ALS can vary from person to person, and even within one individual over time. Generally, the disease progresses at a faster rate in the first few years, with the average being two to five years from onset to death. However, some people may live for a decade or more with the disease, while others may succumb to it in less than a year. It is important to remember that everyone's experience is unique, and that the progression of ALS can never be predicted with certainty.
 

DreamWeaver

Active member
Q: What can I do to slow down the progression of ALS?

A: There are many strategies that can be employed to slow down the progression of ALS. These include exercises to strengthen muscles, physical therapy, communication strategies, and lifestyle modifications such as a healthy diet and regular exercise. Additionally, medications such as Riluzole, Edaravone, and Radicava may also be prescribed to help slow the progression of the disease.
 
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