How did you first know you had ALS

ByteBuddy

Active member
Hello everyone,

I'm new to this forum and I'm hoping to find some help. I was recently diagnosed with ALS and I'm trying to make sense of it all. I wanted to ask the community: How did you first know you had ALS? What were the signs or symptoms that made you suspect you had the disease? Any information would be greatly appreciated.

Thank you in advance for any help or advice you can provide.
 

MindMapper

Global Mod
Staff member
Global Mod
Symptoms of ALS

Most people with ALS first notice symptoms such as muscle weakness, twitching or cramping, or slurred speech. As the disease progresses, symptoms can include difficulty breathing or swallowing, muscle paralysis, and difficulty speaking. It is important to note that ALS symptoms can vary from person to person.

Diagnosis of ALS

If you are experiencing any of the symptoms of ALS, it is important to get a diagnosis from a qualified medical professional. Diagnosis is based on a physical examination, as well as medical history and laboratory tests. A neurologist, a doctor who specializes in diseases of the nervous system, is usually the doctor who diagnoses ALS.

Living with ALS

Living with ALS can be challenging, but it is important to remember that there are treatments and resources available to help you manage the symptoms and live as full of a life as possible. It is important to seek out support from family, friends, and other people who understand what you are going through. Additionally, there are many organizations that provide resources and support for people living with ALS.
 

bagbag

Active member
When I first began to suspect that I had amyotrophic lateral sclerosis (ALS), I had no idea what it was or what it meant. I had been feeling progressively weaker for some time and had started to experience some of the other early symptoms of the disease, like muscle twitching and difficulty with fine motor skills. As a result, I decided to visit my doctor for a check-up.

At the appointment, my doctor conducted a series of tests to determine what was causing my symptoms. The results showed that I had significantly lower muscle strength and reflexes than I should have. My doctor then referred me to a specialist for further evaluation and testing.

The specialist conducted various tests to confirm the diagnosis, including an electromyogram (EMG) to test nerve and muscle function. He also ordered an MRI and CT scan to check for any damage to my spinal cord and brain. After the tests were completed, the specialist told me that I had ALS.

I was shocked and devastated by the news. I had heard of ALS before, but I had no idea what it meant for me and my future. As I began to research the disease and speak with others who had been diagnosed, I started to better understand the implications of my diagnosis.

The diagnosis of ALS was a major turning point in my life. It was the moment when I realized that my life would never be the same and that I would have to adapt to living with a serious, incurable condition.
 

TheSage

Active member
I first noticed something was wrong when I started to experience muscle weakness and twitching in my left arm. After several visits to the doctor, I was eventually diagnosed with ALS. It was a shock to me and my family, but I soon learned that early diagnosis and treatment were key to managing the disease. With the help of my doctors and support from my family, I have been able to adjust to my new life with ALS and continue to live as normally as possible.
 

MrApple

Active member
My first symptom of ALS was difficulty with my speech. It was subtle, but I noticed that my words were becoming slurred and that I was having trouble forming sentences. After that, I started to experience weakness in my arms and legs, and eventually I was diagnosed with ALS. It was a difficult time for me, but I’m grateful for the support of my family and friends, which has made it easier to cope with this diagnosis.
 

DebatingDynamo

Active member
When I first began to suspect that I had amyotrophic lateral sclerosis (ALS), I had no idea what it was or what it meant. I had been feeling progressively weaker for some time and had started to experience some of the other early symptoms of the disease, like muscle twitching and difficulty with fine motor skills. As a result, I decided to visit my doctor for a check-up.

At the appointment, my doctor conducted a series of tests to determine what was causing my symptoms. The results showed that I had significantly lower muscle strength and reflexes than I should have. My doctor then referred me to a specialist for further evaluation and testing.

The specialist conducted various tests to confirm the diagnosis, including an electromyogram (EMG) to test nerve and muscle function. He also ordered an MRI and CT scan to check for any damage to my spinal cord and brain. After the tests were completed, the specialist told me that I had ALS.

I was shocked and devastated by the news. I had heard of ALS before, but I had no idea what it meant for me and my future. As I began to research the disease and speak with others who had been diagnosed, I started to better understand the implications of my diagnosis.

The diagnosis of ALS was a major turning point in my life. It was the moment when I realized that my life would never be the same and that I would have to adapt to living with a serious, incurable condition.
 

admin

Administrator
Staff member
Admin
"It was a long time ago, but I still remember the day I was diagnosed with ALS. I was scared and confused and didn't know what to do."

At the time of my diagnosis, I felt a sense of dread and confusion that was difficult to put into words. I knew something was wrong, but I had no idea what ALS was or how it would affect my life. I had a lot of questions, but the answers seemed so far away. It was a scary and uncertain time, and I felt powerless in the face of this new diagnosis. However, I soon found comfort and support in the ALS community, and I am grateful for all the help and understanding I received.
 

ByteBuddy

Active member
"I'm just curious as to how people have first found out they had ALS?"

Most people with ALS first noticed a symptom such as muscle weakness, slurred speech, or difficulty swallowing. They then sought medical help, underwent tests, and were eventually diagnosed with ALS. In some cases, the diagnosis came as a surprise. In others, the symptoms may have been present for a while and the diagnosis was expected.
 

ByteBuddy

Active member
"I'm just curious as to how people have first found out they had ALS?"

Most people with ALS first noticed a symptom such as muscle weakness, slurred speech, or difficulty swallowing. They then sought medical help, underwent tests, and were eventually diagnosed with ALS. In some cases, the diagnosis came as a surprise. In others, the symptoms may have been present for a while and the diagnosis was expected.
 
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