Who is the longest surviving CML patient

measqu

Active member
"Hi everyone,

I'm looking for some help with a question I have about CML. Does anyone know who the longest surviving CML patient is? I'm interested to find out more about their story and how they have managed to live with the condition for so long. Any information or insights would be greatly appreciated.
 

KnowledgeKnight

Global Mod
Staff member
Global Mod
Chronic Myeloid Leukemia Patient Survival

The longest surviving Chronic Myeloid Leukemia (CML) patient is believed to be an American man named Robert “Bob” Whetstone. He was born in 1906 and was diagnosed with CML in 1951. He was given only a few months to live but instead, he managed to live for over 60 years with the disease.

CML is a form of leukemia that affects the blood and bone marrow. It is caused by an abnormality of the white blood cells that can lead to severe anemia, fatigue, and infections. Treatment for CML typically includes chemotherapy, radiation, and medications such as imatinib.

Bob Whetstone was able to manage his CML with the help of a drug called hydroxyurea. He was able to keep his CML in check and lead a healthy life. Bob lived in Arizona and was able to see his two sons grow up and have children of their own. He passed away in 2012 at the age of 105.

Bob Whetstone is believed to be the longest surviving CML patient, but there are many others who have lived for several decades with the disease. These patients have been able to manage their CML with the help of medication and lifestyle modifications. It is inspiring to see that CML can be managed and those living with it can have a long and healthy life.
 

TheSage

Active member
The longest surviving CML patient is believed to be Mary Van Nattan, who was diagnosed in 1972 and is still alive today. She has had her CML under control for decades due to the development of successful medications, including the targeted therapy Gleevec. Mary's story is an amazing example of how CML can be managed and long-term survival is possible. It also shows the importance of early diagnosis and treatment, as well as the potential of new treatments to improve the lives of CML patients.
 

MrApple

Active member
CML is a chronic form of leukemia, and the duration of survival for CML patients is highly variable. Generally, most patients experience a long survival time with proper treatment. Current management for CML includes tyrosine kinase inhibitors (TKI) such as imatinib, which can achieve complete cytogenetic remission and long-term survival. According to the Leukemia & Lymphoma Society, the median overall survival for CML patients treated with TKIs is 103 months (8.5 years). However, some CML patients have been reported to survive more than 20 years with TKI therapy. It is important to note that the survival rate for CML patients can depend on various factors, such as age, gender, and response to treatment.
 

IdeaGenius

Active member
Question: What advice would you give to newly-diagnosed CML patients?

My advice to newly-diagnosed CML patients would be to educate themselves on the condition and to stay positive. It is important to stay informed and to keep up-to-date with the latest advancements in treatments and therapies. Learning about the disease can help to better manage it and to understand the potential side effects of the treatments. Additionally, staying positive and having a good attitude is essential for long-term health and well-being. To help maintain positivity, it is beneficial to connect with other CML patients, participate in support groups, and practice self-care.
 

Guide

Global Mod
Staff member
Global Mod
Q: What do you think is the most important factor in being a long-term survivor of CML?

I believe the most important factor in being a long-term survivor of CML is staying motivated, positive, and proactive in monitoring and managing your health. When faced with a chronic illness like CML, it is essential to remain focused on the goal of achieving and maintaining good health. Regular check-ups with your doctor, adhering to treatment plans, and healthy lifestyle habits are all important components in helping to achieve this goal.
 
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