End of life with Parkinson's is a difficult topic to discuss. It is a time of great physical, emotional, and spiritual challenge for both the person living with the disease and their family and friends. In this article, we will discuss the common challenges faced at the end of life with Parkinson's, what support and resources are available to those living with the disease, and how to prepare for end of life.
Physical Challenges of End of Life with Parkinson's
Living with Parkinson’s at the end of life can be a difficult experience, both for the person with the disease and for their family and friends. People with Parkinson’s often experience a variety of physical challenges, including difficulty with mobility, changes in sleep patterns, and increased risk of falls. In addition, the person with Parkinson’s may experience increased confusion and/or difficulty with communication, increased pain, and difficulty with swallowing.
Emotional Challenges of End of Life with Parkinson's
End of life can be an incredibly difficult time emotionally for the person living with Parkinson’s and their family and friends. People living with Parkinson’s may experience feelings of grief, loss, and sadness as they come to terms with their illness and the end of their life. They may also feel anxious or scared as they think about the future and the unknown. It is important to provide emotional support to those living with the disease and to be mindful of their feelings.
Spiritual Challenges of End of Life with Parkinson's
End of life can also be a time of great spiritual challenge for the person living with Parkinson’s and their family and friends. People living with Parkinson’s may feel a sense of spiritual confusion or crisis as they come to terms with their illness and the end of their life. It is important to provide spiritual support to those living with the disease and to help them find comfort and peace during this difficult time.
Support and Resources for End of Life with Parkinson's
There are a number of support and resources available to those living with Parkinson’s at the end of life. Patients and their families can access resources such as counseling, support groups, and hospice care. It is also important to ensure that the patient has access to the medications and treatments they need to manage their symptoms and maintain their quality of life.
Preparing for End of Life with Parkinson's
Preparing for end of life with Parkinson’s is an important part of the process. It is important to have conversations with family and friends about end of life care and to have a plan in place for the person with Parkinson’s. It is also important to ensure that the patient has access to the medications and treatments they need to manage their symptoms and maintain their quality of life.
End of life with Parkinson’s is an incredibly difficult time, both for the person living with the disease and for their family and friends. It is important to provide emotional, physical, and spiritual support to those living with the disease and to ensure that they have access to the resources and support they need. Additionally, it is important to prepare for end of life care and to have a plan in place for the person with Parkinson’s.