Trisomy 18, also known as Edwards Syndrome, is a rare genetic disorder caused by the presence of an extra chromosome 18. Babies born with trisomy 18 typically have serious medical issues, including severe intellectual disability, malformations of the heart, brain, and other organs, and limited life expectancy. The average lifespan of babies with trisomy 18 is about one month, but some can live longer with proper medical care. The longest reported survival of a baby with trisomy 18 is over 10 years.
Prognosis and Treatment
The prognosis for babies born with trisomy 18 is very poor. Most will not survive beyond their first year of life. Even with the best medical care, most affected children will not live past the age of two. Babies with trisomy 18 may have a variety of medical issues, including heart defects, gastrointestinal issues, and breathing problems that can cause complications and limit life expectancy.
Babies with trisomy 18 can benefit from supportive care, including physical and occupational therapy, nutrition, and medication to manage symptoms. While there is no cure for trisomy 18, early intervention can help improve quality of life for affected children.
Living with Trisomy 18
Living with trisomy 18 can be challenging for families. Affected children often require a significant amount of care and may have limited life expectancy, which can be difficult for parents and other family members. It is important for families to seek out support from other families living with trisomy 18 and from healthcare professionals.
It is also important to remember that every baby born with trisomy 18 is unique and each one has their own life story. While some may not live past infancy, others can live longer with proper medical care and support.